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Calling all suprapubic catheter users.
Posted: Thu Jan 15, 2015 8:54 am
by 4wheeldave
Over Christmas I was poorly as you can see in my previous post. Four days after finishing the antibiotics I am poorly again. Have just got back from the hospital and am now going to be on co amoxiclav for six weeks would you belive. I asked him about a suprapubic catheter and he thinks this might be the way to go. I would like to hear from anyone with a suprapubic catheter your thoughts experience problems anything at all good or bad.
I just can't cope much longer with infections.
Thanks
4wheeldave.
Re: Calling all suprapubic catheter users.
Posted: Thu Jan 15, 2015 9:23 am
by wheels5894
I have used a supra-pubic for quite a while and they work well, don't get infected and are easier to maintain that the usual catheters. They are just as easy to change - my wife and were taught to do it and we found no problems changing.
The downside for me was that my bladder was a bit more powerful than was idea so I got leaks around the entry point and, at time, leaks from the p*nis as well. This led me to give it up and empty by hand - pressing over the abdomen - and using sheaths at night.
For the last 18 months to 2 years, my bladder, despite having reasonable pressure refuses to empty on its own so I have been self-catheterising 4 times a day or so and been dry at night (quite a bonus).
Please feel free to ask me anything else I haven't answered but I would certainly recommend a supra-pubic over a normal catheter.
Re: Calling all suprapubic catheter users.
Posted: Thu Jan 15, 2015 10:15 am
by 4wheeldave
Thanks for that. I certainly like the bit about don't get infected.
4wheeldave.
Re: Calling all suprapubic catheter users.
Posted: Thu Jan 15, 2015 2:30 pm
by wheels5894
4wheeldave wrote:Thanks for that. I certainly like the bit about don't get infected.
4wheeldave.
That might be the best bit I think. I got an infection earlier this year using intermittent caths so those are no guarantee of being infection free!
Just let me know if you need any more information
Re: Calling all suprapubic catheter users.
Posted: Fri Jan 16, 2015 6:12 pm
by tangerine
There is a surgery called mitrofanoff that might be worth considering too. Bigger surgery but you self catheterised through the hole and it means no leaks through the urethra.
In not sure how I feel about suprapubic catheters. I'm not sure my bladder would get the memo and might leak out of the urethra still!
Re: Calling all suprapubic catheter users.
Posted: Sat Jan 17, 2015 11:54 am
by 4wheeldave
Wow tangerine that was a new one on me. I immediately have looked it up and your right but I must say I don't really fancy it. It all seems a bit drastic but I do suppose it would certainly be less infections. I honestly think I would go back to diapers and normal self cathing before I would go for it.
Really though thanks for the post you have certainly made me aware of something I did not know existed and I am sure I am not the only one.
4wheeldave.
Re: Calling all suprapubic catheter users.
Posted: Sat Jan 17, 2015 5:06 pm
by tangerine
i actually did a little bit more research after posting thatand honestly it did put me off. It is much more major surgery than i thought!at least with a suprapubic I can change my mind and have it out +i could always have mitrofanoffat a later date. I really hope it gets you less infections. I read your other thread after this one.